News
Association of Mucopolysaccharidosis (MPS) and Rare Diseases will help wholeheartedly all children and people chronically affected with MPS and ultra-rare diseases and their caregivers, who found themselves in a difficult living situation due to military operations in Ukraine.
In these hard and dangerous times which affect our friends in Ukraine, we will try to provide advice, help and care. We all should stay together, unite and support each other in this difficult situation, in the first place we must support children and chronically ill patients, who are unable to take care of their own. We have been and we are always with you.
Please send all questions and all needs to: biuro@chorobyrzadkie.pl
18th International Conference on Rare Diseases - Serock 2019
16th International Conference on Rare Diseases - Serock 2018
Downloads:
Invitation (PDF))
Medical sessions (PDF)
Information for participants (PDF)
Registration form (DOC)
Program of conference (PDF)
Application form online
15th International Conference on Rare Diseases - Białobrzegi 2017
Downloads:
Invitation (PDF))
Medical sessions (PDF)
Information for participants (PDF)
Registration form (DOC)
Registration form for lectors (DOC)
Program of conference (PDF)
Application form online
The Association of Patients with Mucopolysaccharidosis and Rare Diseases: our activities and International Rare Diseases Conference, July 2016
Downloads:
Invitation (PDF)
Registration form (PDF)
Registration form (DOC)
Program of conference (PDF)
Application form online
Downloads:
Invitation (PDF)
Registration form (PDF)
Registration form (DOC)
Program of conference (PDF)
Downloads:
Invitation (PDF)
Registration form (PDF)
Registration form (DOC)
Program of conference (PDF)
Pompe Connections / The signs and symptoms of Pompe disease (PDF)
Pompe Connections / Getting the right care for Pompe disease (PDF)
Pompe Connections / Adapting to living with Pompe Disease (PDF)
Pompe Connections / Breathing problems in Pompe disease (PDF)
Pompe Connections / Nutrition and dietary therapy (PDF)
Pompe Connections / Exercise and physical therapy (PDF)
Pompe Connections / Medical progress in Pompe disease (PDF)
Pompe Connections / The emotional impact of Pompe disease (PDF)
Pompe Connections / Common health concerns (PDF)
Pompe Connections / Having children when you have Pompe disease (PDF)
Pompe Connections / Resources for learning more (PDF)
Pompe Connections / Acknowledgments (PDF)
Downloads: II International Conference:
“Vital Problems in Providing Medical Care forPatients with
MPS and Other Rare Genetic Diseases”
The Society of Mucopolysaccharidosis and Rare Diseases hereby invites you to attend the international conference held on 28-30 June 2013 in Spała, a picturesque holiday resort located in central Poland.
Amongst the chief assets of Spała is its strategic location: 110 km from Warsaw, 60 km from Łódź, and 9 km from Tomaszów Mazowiecki.
Conference Venue:
Ośrodek Wypoczynkowo - Szkoleniowy "Zacisze"
Spała, ul. Piłsudskiego 20,
97-215 Inowłódź,
Downloads:
Plan of conference (PDF)
The conference invitation (PDF)
Application form (PDF)
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